Monthly Archives: September 2018

Another Smart Guy

WSJ article

Mom just read this awesome article to me that Mrs. G. managed to find! He’s mainly different than me but we’re both smart and have trouble talking. He’s so right about therapists getting it wrong!

I Was Born Unable to Speak, and a Disputed Treatment Saved Me

The Rapid Prompting Method taught me to communicate. But speech pathologists disdain it.

Wall Street Journal

Ido Kedar

Sept. 23, 2018 1:30 p.m. ET

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Belly and Brain

CHOP King of Prussia

CHOP King of Prussia

My belly has been a problem for me forever. My memories many times are of feeling bad. Many manic moments were because my belly hurt. Lots more issues are the fault of my belly than my brain. I’ll make you imagine how hard it is: like answering a hard question when you just broke your arm. But my doctors never understood. They made me take medicine that made things worse and didn’t listen. My mom tried to tell them but they made her cry. All my teachers knew my belly hurt and the school nurse got it. She told mom about Doctor Boyle and dad got me digestive enzymes. My insides are really sensitive so I have to watch what I eat. And medicine stops my intenstines from cramping. I feel so much better and make so much more progress.

Mom deserves major points for going to all of those appointments. I’m mom’s biggest fan for that. Please, if you are a doctor, take belly problems seriously and be creative when you all make suggestions, and listen to moms and kids—all of them, even the ones who may not talk all the time. Maybe there are more kids like me.

Words in my Head

My new goal is to say more words in my head. I’m going to try when I’m answering math questions. My thought is that mom and I can point to a, b, c, d, e…

Maybe doing math can help me talk. All I’m doing is reinforcing talking – math and writing.

[How does that work?] When I write a word, maybe I’ll practice making the sound in my head.

[Was that working when we were doing math today?] About 10% of the time.

[Tell me about the 10% – What was going on in those cases? Did they have something in common?] Yes. All those times you [mom] helped by naming the letters before [the one I pointed at]. [Giving you a chance to fill in the blank?] Yes. Let’s do that to start.

Follow-up on Instrumental Music

Jace’s Instrumental playlist

My Instrumental playlist

All of my listening [to instrumental music] has had an effect. I’m singing the words in my head and out loud. I’m amazed how instrumental music makes me hear the words. I’m always doing it now! [Like when you’re getting ready to say something?] Yes! Many times, I’m already thinking of words in my head. If you know someone who is having trouble talking, try this!

[Here is a link to Jace’s instrumental playlist in Apple Music.]

Math

Jace at his Center for Talented Youth recognition ceremony

Jace at his Center for Talented Youth recognition ceremony

Math is my favorite subject in school. My mom and I work on math at home many days. Math is mom and my thing. Mostly mom helps me with the computer part. Mom always makes mistakes and I catch them. I’m not loving trig, but manage. I’m so excited mom and I can do algebra together for school. I’m gearing up for pre-calc through CTY, too. My math skills are maybe my most impressive, managing many numbers in my head. I am a great visualizer, so I put that to work making pictures of the answer.