Belly and Brain

CHOP King of Prussia

CHOP King of Prussia

My belly has been a problem for me forever. My memories many times are of feeling bad. Many manic moments were because my belly hurt. Lots more issues are the fault of my belly than my brain. I’ll make you imagine how hard it is: like answering a hard question when you just broke your arm. But my doctors never understood. They made me take medicine that made things worse and didn’t listen. My mom tried to tell them but they made her cry. All my teachers knew my belly hurt and the school nurse got it. She told mom about Doctor Boyle and dad got me digestive enzymes. My insides are really sensitive so I have to watch what I eat. And medicine stops my intenstines from cramping. I feel so much better and make so much more progress.

Mom deserves major points for going to all of those appointments. I’m mom’s biggest fan for that. Please, if you are a doctor, take belly problems seriously and be creative when you all make suggestions, and listen to moms and kids—all of them, even the ones who may not talk all the time. Maybe there are more kids like me.

1 thought on “Belly and Brain

  1. Donna Seiler

    I’m sorry your belly is still giving you problems. I know how much it hurts you. My daughter has had problems as well for much of her life. She has Crohn’s Disease which also gives her pains in her belly. Until she got out of college she was treated by Dr. Liacouras at CHOP. I don’t know if he is still there but we loved him. With all of her medical problems she decided to focus on medical research. She has her Doctorate in Molecular Biology and did cancer research for many years. Her doctor told us that she would have more good days than bad and I hope that’s going to be the case with you. I know you will do great things in the future. May you have many good days ahead!

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