My latest speech: “Opening Doors for Autistic Students”

Karen Beck Pooley and Jace Pooley at the 2026 Rochester Ecology Partners annual symposium

Here is my speech from the annual symposium organized by Rochester Ecology Partners in Rochester, NY, last week. My talk was on “Opening Doors for Autistic Students” and stressed the benefits of nature for kids on the spectrum. Majorly exciting to leave the audience pumped up to hit the trail!

Opening Doors for Autistic Students

Hi everyone! I’m so incredibly proud and grateful to be here with people who care as much about getting more autistic children into hiking as I do! Like only people lucky enough to have experience out on the trail actually understand, we get how profoundly nature can benefit your brain and body! My name is Jace Pooley. When I was planning this presentation, I found myself thinking a lot about my own hiking journey. You have probably figured out by now that I can’t talk. I typed up this introduction and will type my responses to your questions during our discussion – that’s how I communicate. I used to communicate by writing, before I learned how to control my eyes and how to point. But ever since I was 6 I had a way to openly communicate!! Open communication led to hiking for me – hiking on the Appalachian Trail was the thing I asked to do on my eleventh birthday. I’m so glad I had a way to express what I wanted. That ability, to openly communicate, is way too rare among nonspeakers. Probably just 1% of us, tops, have access to a letterboard or keyboard, which make it possible to share whatever is on your mind. This has to change!

Possibly the best birthday activity of all time, that first one-mile hike on the Appalachian Trail made it clear exactly how much I’d love hiking! One mile has turned into 1,433 miles. I’ve hiked from Mount Moosilauke in New Hampshire all the way through Virginia and into Tennessee. To start, my mom and I would go maybe six miles before dad picked us up. Then we worked our way up to ten, then fifteen, then twenty! Who ever imagined that was something I could do?! Not to mention managing all of the ladders and rock scrambles and water crossings that go with all those miles!

It’s not possible to get everyone to the Appalachian Trail all the time, but it is definitely possible to capture its spirit and to find nearby alternatives that can offer similar challenges and benefits. That’s exactly what we’re here to brainstorm about today! And as people think about what kinds of programming to bring to autistic students in the Rochester City School District, I want you thinking about all of the benefits that come with being in nature, and the possibilities for developing motor skills, building confidence, and introducing students to an activity they can do with friends and family!

The Appalachian Trail exists because Benton MacKaye had this idea that as the world got more complicated it became more important for people to have a way to escape into nature! As cars and driving became more common, it got more important to ensure that outdoor options for walking existed. He felt strongly that being in nature and walking have so many physical and mental health benefits!

The benefits are enormous, especially for autistic children and nonspeakers in particular, many of whom struggle with gross motor movements and motor planning, as well as initiating physical activity. Let me share with you how this feels. Only in the last few years have I really gotten the hang of what we call purposeful movement: getting my body to do what my brain wants it to do. Pick any movement, sport-related or playground-related or school-related (like pointing or picking out a book and turning the pages), it’s going to be hard and frustrating. People expect these movements to come naturally but they don’t! It takes lots of practice to connect your thinking to your moving, especially really complex movements that require looking carefully at what you need to do. Makes sense to do this hard and frustrating work in the most relaxing place possible, right? Opposite environment from the insanity of gym class, right? Nothing helps build purposeful movement like hiking, and no environment tops the calm and quiet of nature. Most of my coordination, reflexes, and processing around how to sequence movements developed over my 1,433 miles on the Appalachian Trail!

Possibly even better than what hiking can mean for motor skills is what hiking can mean for mental health, self-esteem, and confidence! I’m always amazed by how the way my mind feels often lines up with how my body is acting. If my body slows down and gets purposeful, my mind does, too! In fact, I consider hiking and purposeful movement almost like medicine for an unruly mind. Then there’s everything hiking and purposeful movement do to make you feel good about yourself, feel proud, feel like hard things can ultimately get easier. Please understand how rare these feelings are for autistic children. It is way more common, in my experience, for autistic children to feel lousy about themselves!!

My other observation is that most autistic children aren’t given opportunities to dream big or push themselves. When do autistic children get to set monster goals?! I spent my school years with rotten goals like that I would behave appropriately or provide the correct response in 8 of 10 trials. Now contrast that with hiking the Pennsylvania section of the Appalachian Trail, or actually reaching over ten miles in a day! Hiking gives you lots of chances to tackle big goals, and the research shows that big goals are a powerful motivator and can boost self-esteem.

I really want to stress, though, how unbelievable it can be to spend time in a place that’s stress free! I only feel relaxed in a few places: at home, at my typing lessons, at my therapist’s, and in nature. Those are the only places where I feel like I fit. So often, everywhere else (especially in school), to be comfortable requires skills I just don’t have. Being able to catch your breath is simply thrilling when it happens so rarely! That’s what a hike is: a big deep breath! Long hikes mean extended time in episodes of calm, fitting in and, best of all, no talking! Having the chance to just enjoy this is so essential! My pleasure getting this break from reality is huge! Be sure to incorporate it – uninterrupted calm and quiet – into any programming for autistic students!!

Going hiking with other people, even ones actually totally unfamiliar to you, is also the easiest social experience there is. You don’t have to talk, you don’t have to be face to face, everyone feels friendly and happy. As a result, it’s a great way for people to get to know each other, and it’s probably about the best way to spend time with friends and family! If students haven’t discovered this, a school-based nature program can indirectly benefit students and their families by opening them up to the perfect option for fun on a weekend or vacation! Our family lives by this, and I have lots of friends who do, too.

Lastly, hiking and being in nature can additionally stimulate interest in all kinds of things to bring into the classroom. I’ve read everything that there is to read about the Appalachian Trail: its development, biographies of its designers and early hikers, the research about its impact on people’s health, and the hysterical book by Bill Bryson. Not while you’re actually walking in the woods, but afterwards there’s this limitless set of things to dig into with autistic students!

Lots to think about! I’m so excited to brainstorm with everyone. The assignment I’m giving you is to dream up programming that builds motor skills, encourages purposeful movement, lets students grow their confidence and set audacious goals, affords students some peace and quiet, kickstarts new friendships and family traditions, and leads to interesting new things to learn about!! Thank you!

Jace Pooley at the 2026 Rochester Ecology Partners annual symposium

My Bethlehem disability speech and a last chance to comment on the IACC draft

A screenshot of the IACC Strategic Plan commenting tool.

Very excited to share my speech at the Bethlehem celebration of disability rights in July. And I also want to share a new tool for commenting on the Interagency Autism Coordinating Committee (IACC) draft strategic plan. (I posted about this recently.) Make this a priority, please! This tool will make it easy!

My speech

Hi everyone!! I’m so happy to be back for another flag raising event celebrating disability rights!

Having made a speech last year, I thought I’d use this one to let you know how much has happened in the time since then.

For me, huge opportunities actually appeared thanks to more support among policymakers and advocacy groups for the direct involvement of those of us with lived experience as neurodiverse people. I’m particularly excited to be part of the first cohort of Communication 4 All interns. The goal of our work is to draw attention to the fact that nearly all nonspeaking autistic people lack access to a method to meaningfully communicate. Hands down the turning point in my life was the moment my awesome aide realized I could write, so I simply and totally profoundly could let my family, teachers, and classmates, know who I really was. This happened when I was in first grade, luckily for me. I have friends who weren’t given the tools to openly communicate or taught how to look and point, until their twenties!

Today, people continue to rant against communication methods like mine! They mostly push for picture cards (often of cartoon images that are babyish, which is infuriating) or talking (which I can’t do, much like a deaf person can’t hear). Trust me, I failed many, many, many, many attempts at both. I am so grateful that my family saved me from more frustration messing up with lousy strategies and that the Bethlehem Area School District let me use the communication method of my choice. Pretty exceptional for a school to do, and something almost none of my nonspeaking friends experienced. But it’s the law: “The type of auxiliary aid or service necessary to ensure effective communication will vary in accordance with the method of communication used by the individual…In determining what types of auxiliary aids and services are necessary, a public entity shall give primary consideration to the requests of individuals with disabilities” (Americans with Disabilities Act, Title II, 28 C.F.R. § 35.160). My internship is focusing on getting more districts to grant students their rights. They could learn a lot from BASD!

Like BASD, the city offers inspiration to others by modeling truly inclusive practices. Today’s flag-raising is one of many events co-planned by a neurodiverse team, designed to celebrate differences and expand rights and access. That only happens when people presume competence – when they give others the benefit of the doubt that they’re smart and worthy of respect. Nothing is better than looking someone in the eye and having them look back and really see you. That’s presuming competence.

You all are so amazing for being here today! Because of you, the work ahead doesn’t seem as intimidating. There’s so much to do to better enforce the laws that exist to protect disability rights, to improve the services available to people with disabilities, and to grow our knowledge and understanding of certain conditions, like nonspeaking autism. I’m overwhelmed but at the same time so motivated to tackle it all!

Jace giving his speech

Please comment on this draft set of recommendations!

Screen capture of IACC Strategic Plan draft
I’m asking everyone for a favor: please comment on the Interagency Autism Coordinating Committee’s draft strategic plan. You can access it here, and the most exciting parts to check out include the ones on motor skills (page 156) and communication access (page 199). Just email your comments and support to IACCPublicInquiries@mail.nih.gov.

I’m including what I sent below, for an example. Obviously, you get to highlight whatever is most important to you!

IACC comments

Priority Therapeutic Domain 10: Motor Planning, Praxis, Sensorimotor Integration, and Apraxia (page 156)

This is so profoundly important! I can’t stress enough how much these challenges impact everything. Luckily, I found a way to communicate that didn’t require using my eyes or good fine or gross motor skills, but literally only the innermost circle of mine could tell what I wrote.

I think it needs to be common practice to teach any child who is not making eye contact or pointing how to both look and point. I didn’t learn to do either of those things until I was 14. Not once during hours of ABA that kept prompting me to point to things did anyone ever help me look or point – they just assumed I didn’t understand or wouldn’t cooperate.

I also want to stress the link between body control and mental health. If my body isn’t under control, my mind is less under control. I hope this plan can highlight the importance of purposeful movement – learning to be in control of and focused on what your body is doing – in regulating emotions, easing anxiety, and reducing mania.

Life Course Domain III: Improving Communication and Access for Nonspeaking and Minimally Speaking Autistic Individuals (page 199)

Happy beyond belief to see this section!

The only thing I need to add to this part is pushing for high standards when a method is tested. If methods involve a trained partner who has a relationship with the nonspeaker, then any test needs to involve a trained partner who has a relationship with the nonspeaker. Plus it needs to be said that having cartoon pictures on cards and devices make them confusing and babyish, especially infuriating for older children! Nonspeakers need to be directly involved in the design and evaluation of these tools!

Jace Pooley
Nonspeaker
Age 18
Bethlehem, PA

Communication 4 All is rocking the summer!

Communication 4 All logo surrounded by pictures of the summer 2026 interns

Overwhelmingly excited to share that I’ve been selected to be a Communication 4 All intern this summer!

Communication 4 All is an incredible organization working to teach people how powerful access to letterboards and keyboards can be for nonspeakers. Less than 1% of those of us with no speech or speech that’s unreliable currently use these life-changing tools, and that has to improve!

Help us ensure that everyone has the right to communicate!

Here’s your assignment:

Let’s be unstoppable!

This Year Could Be the Year of Nonspeakers!

Happy New Year!

Now that some of 2026 is already behind us, I wanted to share all of the reasons I’m thinking that this year could be so good for nonspeakers. First, legislation is moving in some states to ensure that everyone has the right to communicate. In New York, my friend Elizabeth Bonker helped advocate to amend the state’s “mental hygiene” law by adding a communication bill of rights. The amendment requires that “all persons with a disability shall have the right to communicate in their preferred manner and all staff and providers under this section shall have the obligation to ensure and support such rights.” Best of all, the amendment explicitly includes “spelling boards, letterboards and typing-based communication” among the methods listed!

Second, right before the end of the Biden Administration, the Department of Education issued similar guidance. That January 2024 letter focused on assistive technology devices and services, both high and low tech items that help children overcome the challenges their disabilities present. The letter explicitly names text-to-speech and word prediction software and augmentative and alternative communication tools, and how these can improve the self-esteem, confidence, and wellbeing of nonspeakers. There absolutely is reason to doubt the federal government’s commitment to special education and to nonspeakers under the current administration, but I’m holding onto this letter as a sign of what’s possible and just how far we’ve come. And I do see it as really positive that Elizabeth and fellow nonspeaker Caden Larson have been asked to be on the federal Interagency Autism Coordinating Committee. I just know that they will have such important contributions to the committee’s efforts!

Third, there is a growing recognition among scientists that psychologists might have missed some of the story about autism. Researchers are making progress identifying some of the biological and genetic profiles common among individuals diagnosed as autistic. This comes at the same time psychiatrists are better understanding disorders like schizophrenia, bipolar disorder, anxiety, depression, and obsessive compulsive disorder. Getting away from letting outward symptoms and behaviors drive diagnoses, and shifting to a more scientific and objective view of autism is long overdue!

Lastly, there are more nonspeakers advocating for communication access in our communities. My friends and I in Spellers Empowering Education for Nonspeakers (SEEN) are busy giving presentations to parents, therapists, and doctors. Allies are joining in: the Lurie Autism Institute, a joint initiative between Children’s Hospital of Philadelphia and Penn Medicine, is forming its own communication committee, and hopefully I’ll get to help. I also thought that the authors of “Why We Need to Study Assisted Methods to Teach Typing to Nonspeaking Autistic People” leaned into an argument I’ve been waiting to see. “We believe that some methods to teach nonspeaking autistic people to type—long dismissed because they involve the assistance of another person—warrant fresh, unbiased, systematic, and respectful investigation. We are compelled to make this case because in our research labs, clinical practices, and community partnerships, we have gotten to know nonspeaking autistic people who have learned to type independently using these teaching methods.” They see it as essential that nonspeakers be involved at every level of this work. I’ve already written to the authors to thank them for citing my article and to volunteer!

Happy 2026, for sure!

NCC Speech

Here’s the speech I just gave at Northampton Community College’s celebration of the 50th anniversary of IDEA!


Hi everyone! I’m Jace, living proof of the immense opportunities unleashed by the Individuals with Disabilities Education Act (IDEA) that we’re here to celebrate today. I’m someone who, 50 years ago, probably would not have gotten to go to school at all. If I had gone, I would have been separated from the typical students and not had access to the regular curriculum. I’m not being dramatic: a congressional investigation in 1972 found that less than half (48.8%) of children requiring special education services had their educational needs met; nearly one in four (22%) weren’t in school at all. And I have a feeling that those figures were even worse for kids like me.

The act clearly laid out important principles about all children’s right to an education. And it did something kind of remarkable: it envisioned and required a new approach to designing instruction – one tailored to the unique needs of different students. (Parents would get a bigger say in what this individualized instruction should look like in the 1980s.) Today, both of these have come to inform so much about school districts’ operations, funding, and ways of interacting with students. Mainly started to better accommodate students with special needs, this act has actually improved educational opportunities for all students.

Despite all this progress, we still have work to do to improve the school experience for students with special needs. For me, going to school is majorly stressful. That’s not because of the academics, which I find pretty easy. For me, the hard part is that school is very much set up for children whose brains and bodies work totally differently than mine. School expects certain things – like sitting quietly and raising your hand – to be easy. Those “easy” things are such hard work! Navigating countless examples like that takes a toll and usually comes with lots of mistakes. I wish days were organized more around things that are easy for me, like listening to music and podcasts and lessons in all kinds of interesting topics. Ironically, those things are really rare!

I also want to say that there is more work to do for nonspeakers. The biggest challenge is making sure that all students have access to the tools they need to successfully communicate. Having a way to get our thoughts and knowledge across, not only for meeting our needs but also for demonstrating our intelligence, is essential! There were great instructions issued about this in January 2024. These focused on assistive technology devices and services, both high and low tech items that help children overcome the challenges their disabilities present and the support they need to use them. The letter explicitly names text-to-speech and word prediction software and augmentative and alternative communication tools, and how these can improve the self-esteem, confidence and wellbeing of nonspeakers. Yes! If I hadn’t had support writing through elementary and middle school, and if people hadn’t presumed my competence as they taught me to spell on a letterboard and then type on a keyboard, I wouldn’t have made it into national honor society, I wouldn’t be loving my Northampton Community College classes, and I wouldn’t have written this speech. Every nonspeaker should have these kinds of supports and opportunities! Thank you.

Leading the Autism Community Walk and sharing my article!

Front page of Morning Call with article on the Autism Community Walk

When I wrote an article in Pediatrics last January, we reached out to local reporters about the article. Jenny Roberts of LehighValleyNews.com began working on a story, interviewing my uncle Andy Beck and my aides. Meanwhile, I was invited to lead the first ever Autism Community Walk, in Bethlehem’s Saucon Park on April 27, with my mom set to read my article before the walk. That morning, before the walk, Jenny Roberts published her amazing story, having learned about the event that afternoon. At the walk, I was interviewed by reporters from The Morning Call and The Bethlehem Press. I used my iPad to answer questions in real time! Mom did an awesome job reading my article and then we walked all around the park, passing tables where families could learn more about available resources.

Headline and hero image from LehighValleyNews.com story about Autism Community Walk

Now that I’ve been honored with this event and in these news articles, I am more committed than ever to work on behalf of nonspeaking autistics. Our voices must be heard! Every time someone sees me typing, I know it’s changing how they think about nonspeakers. So motivating!

LehighValleyNews.com story

Morning Call story

Bethlehem Press story

WFMZ story